Well, I went to the Dr. on Monday, and just as I thought..... my PFT's are down, and my lungs still sound as though a mack truck is trying to make it's way through them without the use of it's headlights. My ribs are still achey from coughing so much and I'm still, overall, feeling very un-Laura like. The Dr. said that there are some options that we have to try to get the PA to relax for a while. The first and most promising proposal is to get me on inhaled Azli (Caystyn), second option put me on Colistin, since I've never been on it (weird, I know), third option is to stick me back in the hospital and try to desensitize me to Cipro again. They took some more sputum samples and so now I'm just waiting to hear back from my doc to see which option the team (ie- him, the denver people, and the infectious disease docs) choose. Don't get me wrong.... I am still actually very healthy. My PFT's are still "good" even if I feel that they aren't. If it wasn't for the resistance my body has built I'd just chalk this up as another tune up. But when the Dr. says that if they put me back on IV's with my resistance before I really really need them we'll be in big trouble...... it's a little unsettleing.
This has been a real wake up call for me.... I've never not gotten better before. It really makes me think that I should just live and be free and happy. Stop taking things for granted. Tell people you love them, make sure they know. I don't know, jump in puddles, dance in the rain, go to that once in a lifetime concert. Kiss your babies, give them hugs instead of scoldings, do finger paints with them.....even though they are messy. Kiss your husband goodnight, everynight. Tell your parent's you appreciate everything they have done. Let those friends that you love and that carry you from time to time know how much it means to you.
Ok.... that sounds more morbid than I really wanted it to....... I'm just feeling like there are more important things in this world than I thought. Mainly those things are my family and friends. When I think about what it is that makes me happiest, I think about my daughter's eyes...... not my Ipod. So to everyone who cares enough to read this, thank you. Thank you for caring. Thank you for listening. Thank you for being you.

I can relate... Sometimes those thoughts are scary, but I think they help us keep things in perspective.
ReplyDeleteFeel better soon! XOXO